Part of the reason I blog is to keep track of my own progress. I use these posts as a time to relate how I am currently doing and, long term, I will be able to reflect and keep motivated to never allow myself to get so sick again. I also do these updates to help anyone else out there who is suffering with debilitating digestive distresses and who want to fix their ailment "naturally." Just know that Crohn's is far from a glamorous disease, but people relate to truth and can emphasize with honest situations.
Compared to one year ago I seem to be miraculously better. I can function in society, go to a job daily, and volunteer, all without crashing at the end of the day or feeling miserably sick. I don't have "Crohn's cramps" anymore, or at least not on a daily basis, and not so severe that tears come to my eyes for lack of a better expression of pain. Bathroom visits are normal and blood-free. Stranger effects that you may not typically link to digestion: my memory is improving, I used to forget things all the time both short-term and long-term, and while it is still far from perfect, I can actually recall something to mind without having to have first drilled it in my mind specifically because I knew I would have to remember later on. My nails have no more little white spots on them. My skin is less dry. Hair is strlonger and healthier. Dark circles under my eyes are very much gone. And I no longer get cravings for sugary and carb-loaded foods. Things that I am still waiting on to get better: While I do have significantly more energy, I still tire very easily and have spells where I don't feel up to doing much of anything. My hormones are out of whack, so my emotions are up and down throughout the month, as well as stomach pains and mild nausea. Again, not as bad as pre-scd but I'm far from perfect. Even when I get over 8 hours of sleep a night sometimes I need to take hour long naps in the middle of the day so that I don't die. I am not losing weight. I am still "puffy." I can tell there is still a lot of inflammation inside my body. My stomach gets bigger and smaller according to how my digestion is going, still makes loud gurgling noises very frequently, and I can't wear contact lenses because the tear ducts in my eyes are inflamed and cause severe dry eyes. I can digest a lot more foods than I used to be able to. For instance last summer whenever I would eat watermelon I would get really sick, but this year that's not the case at all. I can eat just about whatever raw, legal food I wish and be okay. I haven't cheated in 11 months :)
Well, I have been incorporating cocoa nibs into my diet very slowly the past 2 months, eating about a tablespoon every week or so, which isn't technically legal, but Elaine really didn't explain much about why they are illegal and I seem to tolerate it, so that's my little "cheat" I guess. Other than that I have had no dietary slip-ups I am proud to report.
For those of you on scd, I wish you a successful journey! As always, please feel free to give me suggestions on what you think may help me out! Thanks!
Thank you so much for your blog and giving people hope AND delicious recipes!
ReplyDeleteSince you asked, do you think you could have a food intolerance? I found this info on a SCD website:
http://scdlifestyle.com/2011/03/what-to-do-when-the-scd-diet-isnt-working/
Therese :-)
Thank you so much for doing that research for me :) the guys over at SCD Lifestyle really helped me out when I began scd. I have read that article before and have tried eliminating just about everything. I think at this point only time will heal me better but I so appreciate your sentiments. Thank you for reading my blog!
DeleteGlad to hear you're doing much better. It's great that this disease is one we can somewhat control the symptoms of without resorting to meds or surgery. I couldn't imagine where I'd be. I wouldnt be able to surf everyday or go out with friends. Do you currently take any supplements? My alt. doc gave me whitefish capsules and some quality fish oils that are proven to cut down on inflammation. I'm also taking turmeric daily which has also really helped. Reading your story is inspiring because I often have to remind myself I'm not alone in my situation. I also think you will improve drastically in another year. I'll be praying for ya. Kool dog by the way
ReplyDeleteYes I do take supplements by my chiro-naturopathic doctor, without them I think I would have given up on the power of scd-alone a while ago. I may ask him about fish oils tho! I, too, am grateful that there is some fix to our ailment, I feel so bad for those with diseases like type 1 diabetes that really have no cure currently. It's always good to hear from a fellow Crohnie/scd-er! I am getting into surfing and hope to have the energy to keep it up. Keep up your good work as well :)!
DeleteBy far one of my fav scd food blogs here! Glad the diet is giving you a sense of normalcy and health. Your blog often provides great ideas and recipes I try on the weekend so thank you for your time And creativity! All good wishes, Jon
ReplyDeleteThanks for being a loyal reader! It's so neat to know there are people trying my recipes!
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